Family looking for help

One of my colleagues has a 14-year old daughter who was stricken with a debilitating neural disease 9 months ago. Our dean sent out the following email from her family, requesting help:

Doctors don’t know the cause. Some suspect it’s a rare form of ALS (Lou Gehrig's disease). Phil and Barb, Jenny's parents, are desperately looking for two things:

1. Comparables: If you know or have known people suffering from neural disease, please read the sidebar labeled “Am I a Comparable?” at the site Phil and Barb have set up: http://jenjensfamily.blogspot.com/


2. Doctors: Any doctors you know who might have come across cases like Jenny’s in their practice.

Finding comparables fast could save Jenny’s life. Phil shared with me just yesterday that after months of search, they recently found four comparables. More could make the difference.

If you are able to help, you can contact Jenny's parents directly through the website above.